Huntington’s disease: HDdennomore

HDdennomore (pronounced ‘Hidden No More’) is a global coalition of patient advocates dedicated to raising awareness of Huntington’s disease and ending the stigma and shame around the disease.

Read more about HDdennomore and the Irish perspective here:

Senator Elena Cattaneo greets Huntington’s Disease patient, Yosbely Soto Soto from Lake Maracaibo, Venezuela where the gene that causes HD was discovered in 1993

For more information, see:

Irish Parkinson’s film scoops top prize at NYC Film Festival

After eight days of science films from all over the world, the Irish Parkinson’s film “Feats of Modest Valour” won the top Scientist Award at the Imagine Science Film Festival in New York last night.

Eilis Dowd FOMV Scientist award Imagine Science Festival

In addition to the top Science Award prize, the film was also awarded the runner-up People’s Choice Award.

FOMV Runner Up Peoples Choice award Imagine Science Festival NYC 2017

Huge congratulations to Neuroscience Ireland President, Eilís Dowd, and all at the Galway Neuroscience Centre and Centre for Research in Medical Devices (CÚRAM) for this incredible achievement!

In FOMV, Tom, Milena and Brian live clockwork existences, dictated by a strict regime of medication and the challenging physical reality of living with Parkinson’s disease. Meanwhile, Eilís Dowd and her team of scientists at NUI Galway are developing a new medical device which could revolutionise treatment of this the devastating disease. Woven together with observation and animation, this short documentary invites you to witness the story of groundbreaking medical science and offers a contemplation of life and mortality.

Feats of Modest Valour will be screened on RTÉ in November.

NSI Travel Bursary Winners

Congratulations to our newest round of Travel Bursary winners! We hope you enjoy your conferences, and we look forward to receiving your conference reports for inclusion in our newsletter.

Bibiana Castagna Mota, PhD student with Dr. Áine Kelly, TCD
Coral Lapsley, PhD student with Dr. Elaine Murray, Ulster University, Derry
Luiz Fernando Almeida Silva, PhD student with Prof. David Henshall, RCSI
Mariana Pires Antunes Alves, PhD student with Dr. Tobias Engel, RCSI
Sarah Jarrin, PhD student with Prof. David Finn, NUIG